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www.OurForeverBabies .com

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Our beautiful daughter Olivia Rose Hoon was born on 9th January 2007 at only 25 weeks gestation and weighing only 1lb 13oz (0.82kg) We were expecting her to come on 20th April 2007!!
Livvy as our daughter soon became did really well for the first couple of days then nearly died and was transfered to the Jessop wing neonatal hospital for osillation ventilation which seemed to do the trick but she got a very bad infection and subsequently her O2 requirement went up to 100% we spent a few weeks fighting off infections and having numerous blood transfusions (daily at one point) She also had a large duct in her heart and surgery was discussed daily. She went on a drugs trial to help her with one of the infections and some days did well and other days would just drop her SATS and her heartrate and the crash team would come. She also underwent a course of nitric gas straight into her lungs to help her and eventually had steroids to try and get her of the ventilator as the pressures Livvy was needing were very high and damaging her lungs. After a very rocky couple of months (me living at the hospital) Livvy was transfered back to Chesterfield Royal hospital (I could go home) and slowly Livvy seemed to make good progress (although we did have several Livvy style hiccups where we nearly lost her).
We started to enjoy all the normal family things like dressing Livvy and Bathing her, she even started to take her milk through a bottle (Stubbornly refusing to give up her wind easily). We used to tuck Livvy up in the pram and go for walks around the hospital grounds and play for hours with her toys. She even had a little taster of some baby food!!
My husband and i then spent 5 days at the hospital in our own little flat to see if we could cope with looking after her on our own as she was very oxygen dependant. We loved it, it was great, almost like been a normal family. The hospital were so happy they decided Livvy could come home.(6 months old)
We only had a precious 2 days at home before i thought Olivia didnt look good so we rushed back to the hospital. Livvy's O2 requirement went up so much in the next couple of hours i couldnt understand what was happening (It more than doubled). They put her back on Cpap and we waited for the transport team to come and transfer her to the Sheffield Childrens hospital. Livvy had an up and down time for the next 3 months, including an op to look inside her lungs. but slowly she just couldnt fight any longer, her lungs just didnt grow quick enough for her body. We (her mummy and daddy) stayed up all night just cuddling her and telling her how much we loved her and how proud we were of the fight for life she had shown while she slowly slipped away.
We had our daughter buried in an adult plot so we could be reunited with her one day. She was buried in a pink coffin wearing a special new dress and cuddling her favourite teddy bear.
Mummy and daddy miss you so much but we are for ever grateful for the 9 months of precious memories you gave us. x x x x x x x

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I have found a great deal of strength and support from a lovely site called www.OurForeverBabies.com which is a support forum of mummys and daddys who have lost babies at any gestation or age. I really do not know how i would have got through the hard months without the wonderful friends i have made and i cant tell you how much it means to have people i can talk to that totally understand the way im feeling. I would like to encourage anybody reading Livvys page who has lost a baby at any stage to become a member, you will never look back. xx

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